11-Year-Old Girl 'Allergic' to Sunlight | ABC News

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  • 2/07/2015 को प्रकाशित
  • Savannah Fulkerson has a rare genetic condition that causes her skin to burn when exposed to the sun. Some would say she is allergic to sun or allergic to sunlight.
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    Around the time Savannah Fulkerson turned 4, she became unable to spend any length of time outdoors. “We’d be outside about 20 minutes or so … she’d say, ‘I burn!’” recalled Savannah’s mother Andrea Fulkerson. Fulkerson remembers Savannah in so much pain she had “uncontrollable screaming like she got hit by a car.”

टिप्पणियाँ • 81 254

  • peachydahyun
    peachydahyun 10 महीने पहले +6970

    It’s so heartbreaking how she says “I try not to think about it because some people have it worse than I do”
    Respect for this young lady

    • Marvin the Leopard Gecko
      Marvin the Leopard Gecko 12 दिन पहले

      Ehhhhhhhh i even think I'd rather be paralyzed

    • Alice Wood
      Alice Wood 27 दिन पहले

      She looks like my cousin

    • Crafty Bomb
      Crafty Bomb महीने पहले

      @Bishop Grayson they say that because they are being grateful and looking at the bright side how it could be worse.

    • Itz eclipsy
      Itz eclipsy महीने पहले

      @wlat hwait what do you mean

    • Itz eclipsy
      Itz eclipsy महीने पहले

      ✨respect✨kind✨ Beautiful✨I hope she’s doing ok and got the meds✨

  • starvalley
    starvalley 3 महीने पहले +244

    ''it burns mommy!''
    How I wish I could help that poor kid...
    She's so beautiful... she keeps fighting even though being out it the sun burned so much...
    my prayers to her

    • frank ieros rat
      frank ieros rat 16 दिन पहले

      @Mother on her instagram rn she has pictures of herself in the sun so i think she’s okay now :D

    • Mother
      Mother महीने पहले +4

      Amen, I hope this girl get heals. 🙏🏼

    • Dot.
      Dot. महीने पहले +7

      Amen 🙏🏿

  • Ahmad’s World - عالم أحمد
    Ahmad’s World - عالم أحمد महीने पहले +58

    She is amazing! Its heartbreaking to see those kind of diseases happening to young children, I wish I could help! Stay positive and brave and never give up because You Are Absolutely Worth It, Savannah!! ❤️❤️❤️❤️❤️

  • go eat cheese
    go eat cheese महीने पहले +33

    Its the fact that a little girl, who's been suffering practically all her life. Is so positive And is mature enough to still have a decency and RESPECT to think about everyone else. 👏🏽

  • Lexus Drumgole
    Lexus Drumgole 3 महीने पहले +22

    She is not the only one tho. Make it known for all the ones suffering with Exfoliative dermatitis, atopic dermatitis, eczema, and skin cancer too. This is really painful in the sunlight. My skin gets terrible after I come from outside. I am glad this story is being shared. My family doesn't even understand how mostly everyday i feel like a vampire. I had eczema when I was a kid, but it gotten worst so now I'm still dealing with my condition as an adult facing college hardships and being a young adult. These are some serious illnesses and people need to recognize our conditions. Thank you Savannah and family and hope you are healthy now in 2022.
    🥺💜

  • Elizabeth Merrick
    Elizabeth Merrick साल पहले +10029

    if anyone’s wondering how she’s doing now, she’s participating in a drug trial that allows her to go outside in the sun for a short amount of time. she’s doing great

    • Nezuko Mushrooms
      Nezuko Mushrooms 4 दिन पहले

      @Oksana Thompson What if you had her condition bitch?

    • skankhunt42
      skankhunt42 8 दिन पहले

      Probably on the streets selling ass for drugs

    • AestheticallyLayla
      AestheticallyLayla 11 दिन पहले

      How old is she now?

    • The Island Of Relevancy News
      The Island Of Relevancy News 12 दिन पहले

      Oh how tf do U know ???????????????????

    • Ratz !?
      Ratz !? 12 दिन पहले

      That’s good, I’m glad she’s getting better. Poor little girl

  • KROWKO [卿子] EN VTuber Crow
    KROWKO [卿子] EN VTuber Crow 3 महीने पहले +5

    oh my god... she's still so strong despite that excruciatingly painful condition...hope she's doing ok now...

  • Jay Sonovo
    Jay Sonovo 2 महीने पहले +8

    Quite the little trooper! She's got to be such a night owl! I'm sure she's going to have a lot of fun in college spending nights out.
    But man, what an amazingly positive outlook, she's a sweetheart! Now that she's a young woman, I'm sure due to how much she's already gone through in life that she's tough as nails.
    People like this show how great humanity can be. Despite everything she's grateful for her still wonderful life.

  • Kathryn Harris
    Kathryn Harris महीने पहले

    This girl is utterly amazing. I am very sure that she still has difficult times (I know all too well what it is to live one's whole life with a medical reality others struggle to understand), but I think that she will truly be okay, because she makes her own sunshine. Her wisdom surpasses that of most adults, and she is so articulate & clearly brilliant. Look out world...she will go far!!⚘❤🌜🕯💡
    "And though she be but little, she is fierce."
    -William Shakespeare

  • Becky Mitchell
    Becky Mitchell 3 महीने पहले +10

    I've been suffering with this for a long time. I'm currently 40 yrs old. It is an isolating, depressing disorder most people don't understand. The only time I've had relief is to live in a climate where the uv index is low, so my system don't get aggravated as much. Also, winter is my favorite season, because it's the only time I'm free to be out in the middle of the day. I always run errands at dawn, and when the sun is going down. In my case if the uv index is higher than 3, I will start getting ill effects. Also, in summer I sleep in the day, and up at night. It's an effective way to avoid sickness. Over the years I've had so many people get offended or angry with me because I can't go out and do things when I get invited. I think the worst thing was when someone didn't believe me, so they picked me up early in the morning and kept refusing to take me home. By 2 pm, I was so so sick. Unless someone knows and understands my situation, I don't let anyone get the opportunity to trap me like that, just so they see what happens to me or don't believe me. For some reason people like to do this to me. There are ways to try to bypass getting sick as much. I know certain climates that are sunny with high uv rays are the worst places to live with this condition.

    • Wiegster
      Wiegster महीने पहले

      Have you ever considered cutting out seed oils, like sunflower, soybean etc? This is just a thought since seed oils cause cells to oxidize and create huge inflammations and make us much more prone to burn in sunlight. Animal fats like butter, tallow, lard etc protects the skin from burning.

  • User User
    User User 2 साल पहले +4227

    I’m so thankful for having a healthy body

    • Corey Lane
      Corey Lane महीने पहले

      @Vale This is why your family never loved you! IT’S BECAUSE YOU ARE HEARTLESS!

    • Corey Lane
      Corey Lane महीने पहले

      @Vale She is not emo! You are just a monster that has no heart!

    • Corey Lane
      Corey Lane महीने पहले

      @Vale No it’s not

    • kethy
      kethy 4 महीने पहले +1

      Man you know the chances for this to happen

    • Ari Playz
      Ari Playz 4 महीने पहले

      @Vale Then apologize

  • Amelia Rowland
    Amelia Rowland 2 महीने पहले +3

    It’s actually really surprising how she said she thinks positive and she knows people have more worse the respect for her is high!

  • Naitra Sogani
    Naitra Sogani महीने पहले

    She is so incredibly strong! Many people would break down from this condition. It blows my mind that an 11 year old has such a positive outlook on life even with this condition, and is so so strong! May god bless this girl 🫶🏼

  • 300zxSkates
    300zxSkates 3 महीने पहले +6

    I hope her life turns around. ❤️

  • CoasterHorizons
    CoasterHorizons 3 महीने पहले +4

    she’s living proof that people who go through the most grow up the fastest

  • Miriam Eclipse
    Miriam Eclipse 2 साल पहले +2488

    “ I just try to think positive because I know there are people who have it way worse than me “ WOW WHAT A GIRL🙌🏾

    • Junomaster
      Junomaster महीने पहले

      Could you also preach this to the black community in which they still think they are being oppressed & think that the whole world is out to get them?

    • Bobby Dee
      Bobby Dee महीने पहले

      @Love Bug it's not about invalidation, it's about realising that people have it far worse so instead of self loathing and complaining just be grateful for what you have in life not what you don't have

    • Bobby Dee
      Bobby Dee महीने पहले

      @NABz Lasted yes it is, it's about bring grateful for what you have not what you don't have because there are so many people suffering so much worse

    • Kaden🇺🇦
      Kaden🇺🇦 2 महीने पहले +1

      @Myst You must be fun at parties.

    • Bev bee
      Bev bee 2 महीने पहले

      @Fireblaster 89 Yeah but not everyone in Africa is poor.
      Is that just the first thing that comes to you mind when somebody mentions Africa? Poor kids in Africa living in poverty?
      You disgust me.

  • ☆Shay ☆
    ☆Shay ☆ 3 महीने पहले +1

    This young lady really has an explanation for it and a way with words

  • random _person
    random _person 3 महीने पहले

    This girl is a trooper ❤️

  • Jimmy hurley
    Jimmy hurley 2 महीने पहले

    I had a friend in my early teens that had a similar condition, he would develop what looked like scales and he would bleed from the cracks in between the scales, this also was caused by sunlight... His family moved away one day suddenly... I never found out what happened to him.

  • Rebecca Martin
    Rebecca Martin महीने पहले +1

    I also love how that girl so strong in spirit 💛

  • Something
    Something 2 साल पहले +4441

    “It burns mommy” for some reason that hit hard 😔

    • °•itz toca Sophia•°
      °•itz toca Sophia•° महीने पहले

      yeah the "it burns mommy" hit hard.

    • Corey Lane
      Corey Lane महीने पहले

      @Vale No it’s not! How would you like it if you were allergic to the sun?

    • Junomaster
      Junomaster महीने पहले

      @ccc calm down

    • whiskas_sachet6000
      whiskas_sachet6000 2 महीने पहले

      @Vale there's no humor in it, you a gen Z? You fucking laughter seeing a cell move a fucking inch?

    • Pinkamena diane pie
      Pinkamena diane pie 3 महीने पहले

      @weird potato even tho im pinkie pie a pony that laughs all the time but for some reason what you said was really unfunny 😟

  • Adelyn Sepulveda
    Adelyn Sepulveda महीने पहले

    You poor baby. You can get through this, I know you can. It's hard to be allergic to the sun! I'm allergic to almost everything, i'm not lying haha! You can do this, go girl!

  • RoadPizza04
    RoadPizza04 2 महीने पहले +2

    Shes had to mature so quickly because of her condition. "Its not gonna tear me down. Its just gonna build me up." Damn, most adults dont have this mindset, me included. God bless young lady!

  • Muhammad anya
    Muhammad anya 3 महीने पहले +4

    That girl is strong respect for her😔

  • G D
    G D 8 दिन पहले +2

    Hang in there, girl!!!! There's always hope, my dear!!! Stay strong!!!

  • Grayson
    Grayson साल पहले +8162

    Can we all give a salute to this girl for being in quarantine for her whole childhood and possibly her entire life

    • Cam plays games
      Cam plays games 13 दिन पहले +1

      Fax

    • ~PEisha•the•ĸįtťy~
      ~PEisha•the•ĸįtťy~ 14 दिन पहले

      salutes

    • Baby JG
      Baby JG 17 दिन पहले

      @SparrowIZCheif the clouds are just covering it

    • Ethan Skz
      Ethan Skz 26 दिन पहले

      @Gabriel Gaming that drug costs more than a house and is in trial. She doesn't have it that easy.
      it's called Scenesse in consumer terms

    • Sneaky & SSO
      Sneaky & SSO 28 दिन पहले

      I ALSO HAVE THAT!!😝

  • Cheese balls Guppy
    Cheese balls Guppy 2 महीने पहले +2

    I couldn’t do anything if I was allergic to sunlight but just because you can’t do a lot like others you can still enjoy life don’t ruin the rest of your days don’t let it get in your way always be calm be but careful with the sun so you don’t have to feel the pain god bless you♥️

  • Corey Lane
    Corey Lane महीने पहले +1

    “It’s burns mommy!”
    That literally broke my heart 💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭

  • Aditiplayzadoptmeh
    Aditiplayzadoptmeh 3 महीने पहले +1

    I have the same thing, I’m 9. It’s very hard because my friends can play and I can’t. It feels like lave is burning through you, and it’s like I’m gonna explode. I hope we find a cure, mommy promised that one day I would be able to feel the sun on my skin.

  • Help me get 1k subs
    Help me get 1k subs महीने पहले +1

    It feels so heart broken to see her born like this. Now I can understand why they say "Your life could be someone's dream" now.

  • Human51
    Human51 2 साल पहले +6831

    I don't understand how some could be so *stupid* , to make fun of her for this.

    • gorilla gamers
      gorilla gamers 3 महीने पहले

      damn she never touched grass

    • SkittleKitty
      SkittleKitty 3 महीने पहले

      Omg the kids in the replies saying she’s “lucky” 💀 what a world we live in.

    • Deez
      Deez 5 महीने पहले

      Bro stfu. She said she doesnt care people are making fun of here. This comment is so irrelevant. Thanks for pointing out the obvious.

    • TheMazeSystem
      TheMazeSystem 5 महीने पहले

      @Benjamin Eriksson the nordic countries do also have sunlight💀

    • casp€r123
      casp€r123 7 महीने पहले

      @Amogus yeah😔

  • Rema Mendonce
    Rema Mendonce महीने पहले +2

    What a positive attitude of the brave girl

  • Pratt Real Estate Group
    Pratt Real Estate Group 6 दिन पहले +1

    Wow! This makes me really appreciate my melanin. I hope she gets well.

  • 🧡spookyyxpaislee🧡
    🧡spookyyxpaislee🧡 3 महीने पहले +1

    This is so heartbreaking 💔

  • •𝕄𝕒𝕫 𝕄𝕒𝕪𝕙𝕖𝕞•
    •𝕄𝕒𝕫 𝕄𝕒𝕪𝕙𝕖𝕞• 3 महीने पहले +3

    Wait. So you’re telling me she could be a 50/50 vampire?? Damm I wanna be a vampire but mad respect for this girl ✊✊🏻✊🏼✊🏽✊🏾✊🏿❤️

  • Catundertail
    Catundertail साल पहले +5092

    shes been quarantined her whole life, respect.

    • Faith Martinez
      Faith Martinez 11 महीने पहले

      So have I but I’m not allergic to the sun my mom just keeps me in the house

    • Himiko toga-if she was in a bad mood
      Himiko toga-if she was in a bad mood 11 महीने पहले

      @Kailey McCracken if she’s in 2021 then she’s a legend! She’s gonna live forever! Congrats to her!!! ❤️❤️❤️♥️

    • Milk
      Milk 11 महीने पहले

      @MySingingMonstersITA Arkims LMAOOOO

    • podracer155
      podracer155 11 महीने पहले

      She has a good heart.

    • notic3d
      notic3d साल पहले

      @QueenCleo's books r u ok

  • Shyviolet
    Shyviolet 17 दिन पहले

    What a sweetheart! ❤️

  • Melissa Riley
    Melissa Riley 11 दिन पहले +2

    I hope she is doing better she looks like a good kid keep your head up and don’t let anyone say anything bad about u we all love you

  • Hot Take, Babe
    Hot Take, Babe 22 दिन पहले +2

    I worked at a daycare with a child who had this condition to a less severe degree. She had to be completely covered head to toe even when it was overcast.

  • Maggie M
    Maggie M 3 महीने पहले +3

    This girl. Oh my god. I'm so sorry. I hope you find your own way to have sunshine, without sunshine. You're a brave kid.

  • Cheyenne Galindo
    Cheyenne Galindo 2 साल पहले +3049

    she’s such a sweet kid and she’s so beautiful keep thriving girl

  • Mackenzie Kurth
    Mackenzie Kurth 2 महीने पहले

    She is so positive, I respect this little lady

  • Hunter Caillier
    Hunter Caillier 3 महीने पहले +1

    found her on instagram, she just graduated and looks like she’s having fun in the sun!

  • Catraxx
    Catraxx 3 महीने पहले +1

    I feel so bad for This girl. Literally crying rn😭

  • MissSulli
    MissSulli महीने पहले

    God bless her and her mom. 🙏🙏

  • Bakersfield. Chisme. what you're Chisme about
    Bakersfield. Chisme. what you're Chisme about 2 साल पहले +2594

    It's so heartbroken seeing a child going through pain

    • Mars
      Mars 10 महीने पहले

      WHYYYY

    • Megan Thursby
      Megan Thursby 10 महीने पहले

      @MattTheFlexer shut up

    • Sprite
      Sprite 10 महीने पहले

      @MattTheFlexer being in excruciating, unexplainable, burning pain and crying is so cringe

    • Lucifer_little_Angel666
      Lucifer_little_Angel666 11 महीने पहले

      @drakefrombts☆ ?

    • drakefrombts☆
      drakefrombts☆ 11 महीने पहले

      @Lucifer_little_Angel666 oh no hErE cOmEs thE bAdAsS

  • yPedro x
    yPedro x महीने पहले

    Respect for this young lady

  • Veronica Fleitas
    Veronica Fleitas महीने पहले

    I learnt about her condition back in my birth country, where an entire family only comes out at night, their house windows are covered with black wood. Also, you can watch Mystery Diagnosis about a case; this girl was overexposed all her life to sunlight, thank God they put a name to it

  • Bee Walk34
    Bee Walk34 3 महीने पहले

    Prayers for this little lady!!!

  • Happy Lilac
    Happy Lilac महीने पहले

    I feel so bad for her, im 9 and knowing this I feel so grateful that I’m a healthy girl! I hope that savanna will still live a good life and all bullies will step off and just be grateful for it and be nice to poor savanna

  • Justin William
    Justin William 2 साल पहले +845

    My gf’s experiencing the same. She’s allergic to heat, pollen, seafood, fur, and many things. It’s horrible.

    • Darryl Erickson
      Darryl Erickson 17 दिन पहले

      @SRB SA …. This is disgusting, I hate you, you’re an awful person….
      But ngl, that was hilarious.

    • Darryl Erickson
      Darryl Erickson 17 दिन पहले

      Allergic to HEAT? Then she would always feel pain…. Humans are basically always touching heat.

    • William Ahkoi Jr.
      William Ahkoi Jr. 7 महीने पहले

      Prayers for your girlfriend. Amene

    • catto
      catto साल पहले

      It’s so nice of you to be with her even if she’s allergic to so many things, some people wouldn’t want to date somebody with those allergies

    • Justin William
      Justin William साल पहले

      @dummy Bih you are utterly uneducated, bruh. You might look that up before commenting.

  • Saba A
    Saba A 22 दिन पहले

    This is perhaps the most mature girl I’ve seen in her age x

  • T. Spiv
    T. Spiv महीने पहले

    This is heartbreaking seeing her struggle like that

  • Animal love
    Animal love 3 दिन पहले

    It’s so heartbreaking 💔

  • Astro-Mercy II
    Astro-Mercy II 2 महीने पहले +2

    I shall call her vampire girl! It's not a rude name, I find it unique she's allergic of the sun, she's such an amazing trooper.

  • The Greek Pianist
    The Greek Pianist साल पहले +1401

    Seeing a child suffer is the hardest thing to watch 😭 no innocent child should have to suffer. Not at all. I’m so glad she’s doing better ♥️

    • Alex & Alyssa
      Alex & Alyssa 8 महीने पहले

      @ Nazi Germany if she was allergic to oxygen she would have not lived

    • LasagnaCat_Gaming69
      LasagnaCat_Gaming69 8 महीने पहले

      Most people want children to suffer now that I think about it

    • Raidercrimson
      Raidercrimson 9 महीने पहले

      @samuelhere what do u mean so are u tapped do u think these stuff is funny there not fam that's scary u should get a brain check because your not funny your sad man!

    • Raidercrimson
      Raidercrimson 9 महीने पहले +1

      @UR MOM • 7 Years Ago . True

    • 1 Mol
      1 Mol 9 महीने पहले

      I think she might’ve got bitten by a vampire

  • M S
    M S 4 महीने पहले +1

    i found out today that a girl in my class may have the same allergy as this girl. even though it is may, she is wearing a jacket. i wish that someday, the drug used to help people like her is made and distributed across the world.

  • Tina Power Traverse
    Tina Power Traverse 3 महीने पहले

    God bless her 🙏🏻

  • Rebecca Martin
    Rebecca Martin महीने पहले +1

    This video is amazing for awareness 👑

  • HelloKittyVibes
    HelloKittyVibes 3 महीने पहले

    OMGGGG IM SO SAD NOWWW, I hope she’s ok!

  • Blinks Bill
    Blinks Bill 6 महीने पहले +958

    I have had terrible pain from dermatitis before it was diagnosed, so I cannot imagine this next level pain. God bless this child

    • GS - Vlogs and Games
      GS - Vlogs and Games 2 घंटे पहले

      @npc I don’t agree with being rude to matrix, but this isn’t a situation to joke around

    • npc
      npc 6 घंटे पहले

      god stop being rude to matrix he just said its similair to a vampire.

    • GS - Vlogs and Games
      GS - Vlogs and Games महीने पहले +1

      @s h good to hear

    • s h
      s h महीने पहले

      @GS - Vlogs and Games I'm fine now nothing like what this girl has.

    • GS - Vlogs and Games
      GS - Vlogs and Games महीने पहले +1

      @s h I hope you’re feeling better now

  • Rodney Mineweaser
    Rodney Mineweaser 4 महीने पहले

    That poor little girl. That brings me to tears.

  • Aleta
    Aleta 3 महीने पहले

    I hope she gets better. I hope the next time she goes outside she’ll be fine/not allergic. I really really reallyyyyy hope there’s a cure.

  • Donna French
    Donna French 2 महीने पहले

    My son, an adult now, lived playing in the sun most of his life. In his twenties he became allergic to the sun. As soon as Spring starts, he gets blisters on his skin. The itch is unbearable. Turns out he has PMLE poly Morpheus light eruption. most doctors are not aware of this condition!

  • Patricia Prior
    Patricia Prior 10 दिन पहले

    Five years of suffering waiting for a correct diagnosis,while doctors are telling her Mom it is eczema . Many families would not have the money, health insurance or determination to keep looking for an answer. Glad this little girl got her miracle.

  • Ashur Holt
    Ashur Holt साल पहले +4164

    Poor girl, I mean you could hear the pain in her voice as she laughed. It must be so hard.

    • jermaine rodgers
      jermaine rodgers 3 महीने पहले

      She can enjoy nightlife

    • NIO
      NIO 3 महीने पहले

      So pretentious..
      I can hear your pretentious pity.

    • JellyzzS
      JellyzzS 3 महीने पहले

      @gato fino yeah

    • K1xr
      K1xr 3 महीने पहले

      @Sunflower 02 your point doesn’t stand tho, bc 18 and 19 year olds are adults.
      If you see 18+ then that means ADULTS.

    • AtomicNumber80
      AtomicNumber80 4 महीने पहले

      😂

  • Izzy ☆
    Izzy ☆ 2 महीने पहले

    Shes 18 now omg i can't imagine how she feels

  • VibeWouldKnow
    VibeWouldKnow महीने पहले +1

    She is such a strong girl may god bless her and guide her and give her purpose and fulfillment

  • Anne
    Anne 3 महीने पहले

    She’s 18 now. I hope she’s fine

  • s h
    s h महीने पहले

    I had exma and I couldn't even move my arms and head because it hurt so much it was like that a while after I started treatment and I still can't even imagine how bad this is for this girl.

  • Gummy
    Gummy साल पहले +1781

    I wonder how she's doing now. It's been nearly 6 years.

    • Muhammad Bilal
      Muhammad Bilal साल पहले

      @Honey. stop

    • f22 raptor
      f22 raptor साल पहले

      @IHaveSnacks she hasnt been uploading for months

    • IHaveSnacks
      IHaveSnacks साल पहले

      She has a channel and she seems to be doing okay inclips.net/channel/UC030NDuiz7kfwJqE-k7XxDw

    • Muhammad Bilal
      Muhammad Bilal साल पहले

      @boba tea波巴茶 lolwut five years

    • boba tea波巴茶
      boba tea波巴茶 साल पहले

      @Muhammad Bilal because you was being mean to honey it's 5 years

  • DREAMLAND
    DREAMLAND 3 महीने पहले

    The way she cried broke my heart 😔

  • LalaOopsieCookie67
    LalaOopsieCookie67 2 महीने पहले

    Poor girl this is heartbreaking 💔

  • Austyy
    Austyy 4 महीने पहले

    Omg. Poor kiddo. I’ve been in chronic pain like that because of muscle death that was misdiagnosed. 17 days of excruciating pain at 25 years old. I can only imagine being that small begging for pain relief. I hope they can find a treatment so that she would be able to get in the sun again one day.

  • Andrew baum
    Andrew baum 2 महीने पहले

    She’s 18 now I feel so bad that she has to suffer through this

  • Gravity Changer
    Gravity Changer साल पहले +1095

    Stop making fun of her lets just pray for her and for everyone who's suffering

    • southern redneck
      southern redneck साल पहले

      @Random Name idk foxtrot uniform charlie kilo yankee oscar uniform

    • peter v
      peter v साल पहले

      Yeah

    • Devasahayam Jannu
      Devasahayam Jannu साल पहले

      yes

    • arianayuh
      arianayuh साल पहले

      @Wet Socks keep that to yourself there is religions like Muslims,Christians and any other religions here

    • Lucky Dragon05
      Lucky Dragon05 साल पहले

      @SalasyK I changed my beliefs, Im sorry for the past comment. It wasnt very nice, im now more educatee

  • Idkanymorelol
    Idkanymorelol 2 महीने पहले +1

    3:00 and 3:14 those words made my heart sink :( the way she forced a laugh to is just so sad, I wish the best for her allergy to go down and hopefully vanish.

  • PIPI UND KAKI I PIPI CACA LAND
    PIPI UND KAKI I PIPI CACA LAND 2 महीने पहले +1

    Hopefully doctors and scientists find a cure~

  • BP Living
    BP Living 2 महीने पहले +1

    My son has bad allergy as well. As parents it breaks our heart. He would get really bad skin and gouge his skin all over. He bleeds and has wounds all the time. We just pray, and take care of him best we could. He is a very smart and strong child though.

  • idkbruh
    idkbruh 3 महीने पहले

    I have something similar like this, my hands burn when it's cold outside so i had to go in an warm place, i didn't get fun of because alot of people don't believe it, an doctor gave me big gloves to keep my hands warm.

  • STRAWBERRY
    STRAWBERRY साल पहले +2922

    This almost made me cry,imagine having a condition that puts you through SO much pain.

    • Goldie
      Goldie 3 महीने पहले

      @paris_ Oh, now I see what you’re saying. I apologize, it just gets me very angry because everyone makes jokes of it because they don’t realize kids literally die from it, but when it’s not about that they say “don’t joke about people dying” yet they make fun of kids with severe peanut allergies.

    • paris_
      paris_ 3 महीने पहले

      @Goldie I didn’t mean to be offensive. this was quite awhile ago, but my point wasn’t clear,, I meant to say that some are more allergic to stuff than others. i wasn’t fully accurate, I meant some would be MORE allergic or less allergic to a, peanut we say because all bodies are different

    • Goldie
      Goldie 3 महीने पहले

      @paris_ well EXCUSE ME! 😡 if I eat one peanut I die, so don’t assume that! 😠

    • TheOutsider
      TheOutsider 3 महीने पहले

      Especially seeing that people bullied her for it! It’s not her fault

    • Sleep
      Sleep 4 महीने पहले +1

      Why to imagine when I'm facing the same problem :)

  • Liba
    Liba 3 महीने पहले +2

    This is very painful , she is suffering from a lot of pain. I can feel that. I had aslo sun light allergy in only winter season sunlight. I used to could not run in sun in winter season. Who spend in winter season ,they know that how comfortable and sweet feeling in winter sunlight. But I couldn't work in sunlight. It was very painful for me for 3 years . I have visited to many allopathy doctors but there was no permanent solution. I was hopless because I couldn't work in sunlight in winter season. But I am fully cured from that pain after taking HOMEOPATHY TREATMENT. I am very thankful to Almighty creator and also thankful to homeopathy medicine inventor Sir Samuel Hahnemann. May Almighty Allah cure her from this pain.

  • Lily 💜 🤪
    Lily 💜 🤪 14 दिन पहले +1

    “Dark is my home. Hahah!”
    You can literally hear the pain in her voice

  • The cool kid Mr copper
    The cool kid Mr copper 2 महीने पहले

    Respect to this young girl. She is so strong and copes with staying in the dark so well.

  • Savage Viper - Brawl Stars
    Savage Viper - Brawl Stars 4 महीने पहले

    I feel sooooo bad for her. I feel like crying. I wish and hope the best for her.

  • bloopbleep
    bloopbleep साल पहले +4969

    if you were wondering how she’s doing now, well she was approved to use the afamelanotide drug and she said that the treatment is going well and she can lay out in the sun without covering now!

    • SunnyxRosa_4
      SunnyxRosa_4 4 महीने पहले +1

      How u know bloopbeep

    • christian ngosa
      christian ngosa 5 महीने पहले +1

      im the 100th commentor XD

    • Abinash Gunarathnam
      Abinash Gunarathnam 5 महीने पहले +1

      Happy for her

    • LTM_1011
      LTM_1011 5 महीने पहले

      @Bara Lover Yup!

    • Bara Lover
      Bara Lover 5 महीने पहले +1

      That's good!

  • Cheyenne Sauciwr
    Cheyenne Sauciwr 3 महीने पहले

    My sister was allergic to the sun for half her life but she got over it after a while and she can go outside now and feels really better and she was allergic to strawberries I hated seeing my sister go threw it so I understand how she feels

  • Yoseline Pompa
    Yoseline Pompa महीने पहले

    Same. I swear, when I was told this I had no idea why I can’t be around the sun.

  • Bawl Stars
    Bawl Stars 3 महीने पहले +2

    As a night-owl introvert with social anxiety, I see no problem with this tbh

  • Chris Fittipaldi
    Chris Fittipaldi 3 महीने पहले +1

    It goes to show we should take advantage of the things we have like going outside and not on our games

  • Shantel Vlogs
    Shantel Vlogs साल पहले +3892

    "i just try to think positive because other people have it worse than me." wow the respect👏🏾. poor girl😕

    • k-dubs
      k-dubs महीने पहले

      @Tom Holland's booboo ÚWÙ well it’s not like SHE can do anything about it now can she

    • Princess Floralde
      Princess Floralde 2 महीने पहले

      @sorry (○
      |
      |○

    • sorry
      sorry 3 महीने पहले

      @u don't sub u gay Her last vid got 30 views, n it was posted 6 months ago☠️im dead

    • sorry
      sorry 3 महीने पहले

      @Shantel Vlogs LOOOOL No way your last vid got 30 views

    • u don't sub u gay
      u don't sub u gay 3 महीने पहले +1

      @Shantel Vlogs you only have 112 💀

  • Lanugget2x
    Lanugget2x महीने पहले

    This is really heartbreaking I feel the pain she goes thruogh I have sicklesell anemia and the worst thing about it that it’s the worst one and I sometimes randomly have a pain crisis and it even starts sending pain to my tooth and when I brush my teeth it stops but the pain goes back to my back I really feel the pain she goes through

  • Laiba bi
    Laiba bi 3 महीने पहले +1

    I AM GOING TO CRY FOR THAT GIRL

  • zaji z.
    zaji z. महीने पहले

    developed the same issue after severe exposure to mold that destroyed my immune system for over a year. I wasn't able to stay in the sun for longer than 5 minutes. Would begin to itch and horrible welts developed on my body. It was wild. I couldn't even shower for longer than 60 seconds in hot water. Welts and itching instantly. I had to semi-fast for about a year on strictly distilled water, fruits and vegetables. Organic where possible. And I had to eat minimal, no more than a fist full of food, twice per day. I also juiced fruits and vegetables when I felt slightly hungry in between. I started with only eating bell peppers and drinking water for a couple months, then slowly incorporated other fruits, vegetables, and juicing. In a little over a year, the condition went away and my immune response went back to normal. I could stay in the sun again without issue. I thought it would never end, but semi-fasting helped me.

  • INTER
    INTER महीने पहले

    I feel so so sorry for her🥺

  • cole simon
    cole simon 2 साल पहले +15557

    all yall complaining about staying inside during quarantine imagine how she feel😳

    • Elaxer Blaxer
      Elaxer Blaxer महीने पहले

      It’s no different to the life of a discord mod
      Or a dream Stan
      Or a jellybean fan

    • Hayd
      Hayd महीने पहले

      @BenOfTheWeek's Lovely Wife ngl I wrote this 2 years ago my mindset has changed a lot since then this opinion definitely isn’t something I agree on now

    • BenOfTheWeek's Lovely Wife
      BenOfTheWeek's Lovely Wife महीने पहले

      @Hayd giving "you can't be sad because people are sadder than you"

    • cole simon
      cole simon महीने पहले

      @C͙a͙l͙m͙ M͙i͙n͙t͙ ye I still get notifications from this comment

    • cole simon
      cole simon महीने पहले

      @thedude bro mad as hell☠️☠️☠️😭

  • Mateo Hoyos
    Mateo Hoyos 3 महीने पहले

    Likely no one will truly know how she feels, if someone else gets EPP, sorry to you and Savanna.

  • Capucine Colby
    Capucine Colby 2 महीने पहले

    I feel so sorry for her 😢

  • Rapunzel girl
    Rapunzel girl महीने पहले +1

    I have a mild version of this. I can go outside but I have to stay in the shade, wear spf 100 sunscreen, cover up, and stay under an umbrella. The worst is when I’m stuck in a car and I start to itch and sting from the sun coming through the window. I take medication and have creams and ointments and Benadryl if it gets really bad. But I mostly just stay inside and try to plan outdoor activities for the evenings. I essentially get a rash all over if I’m in direct sunlight. Not fun at all and definitely makes things difficult. It definitely stings and burns and is painfully itchy if I don’t have any protection from the sun

  • ZZZEEEDDD
    ZZZEEEDDD 5 दिन पहले

    well i had asthma... and like i couldn't run like others it was exercise-related and get regular attacks tho so even if its not related with any symptoms of "allergic" to sun I can still feel the pain of not being able to do something that others can do and enjoy at regular paces I feel bad for this girl.. i hope she's doing good